mortiz007

A MIGHTY WARRIOR.....this battle has been fought.  AND WON!  He has scars.  Lots of battle scars.  The physical ones heal first and then slowly the emotional ones.  The pokes and unknown, the skittishness.  The uneasiness of what is coming, time will heal.   We're emotionally exhausted from this battle.  Overall the surgery, and recovery went well.  He had the usual pain management at first, urology issues and too many people messing down there, chest tubes prematurely eking out (can't imagine why on a constantly moving 2 year old), insomnia, and pesky plural effusions had him readmitted for a fifth chest tube over memorial weekend.  Recovery always has it's ups and downs, but we have to keep the perspective on the big picture, of the miracle, he is given.  Wen Xiang has a severe form congenital heart disease.  It's not fixable.  It's managed and though I would never say this about my children, because it gives the disease the power, some would say terminal.   So fo