mortiz007

Facebook Wednesday 8:00 am Joseph has woke up a bit. Peeking his eyes open and wiggling his hands and feet. He is very responsive to my questions and says he's not in any pain. I asked if Dr A fixed his heart and he shook his head yes! So thankful for this team working tirelessly to manage him. His heart rhythms continues to be an issue. It's sporadic and they are trying to figure out how to manage it. Praise God for this miracle that has given to Feng Yu Facebook Wednesday 8:30 pm Some people say blood is thicker than water- I would have to disagree. Family is family. Orchestrated by God, Created by God in many different ways. These two met only 6 months ago and are as close as twins. Today was rough with many ups and down as we expect- but the one name that made him perk up and the one name that called him down was his little sister, Hua Hua. Today was filled with many waves and bumps as expected for the first day post op his full heart repair.  Overall Feng Yu is doing well.

Well we all left the hospital Tuesday morning about 9:30.  After numerous surgeries with multiple children, I turned to Ryan as we sat in the car  and said 'Well we never experienced that before!"  Always something new....but we were both totally at peace with the decision to postpone surgery. Back up to 6:15 am Tuesday morning.  Everything was going as planned.  We arrived on time, for once!  We checked into his pre op room, watched a few cartoons, met with Dr A., the other surgeon, the anaesthesiologist.  He took his Versed (relaxing meds) and one the last trip to the bathroom, I noticed a small rash in the groin area.  After pointing it out to Dr A., he called in a team of peds doctors to look at him.  The whole team decided it was best to wait and not take any chances introducing a possible infection/complications.  This surgery is big-  not anyday kind of surgery for this team and they want the best results for little man.  We need him in perfect shape going in and any va

 Just four years ago, I can only imagine the agony as someone placed their sweet baby at these gates in hope that he would live on.  They were selfless and honored their son in hopes he would receive medical care.  His heart was physically broken.  We exist in this broken world and I don't know why, but we were chosen and are honored to be this little man's parents.  He is the sweetest little boy, with the biggest smile. I only wish that his birth parents knew tomorrow he will be given the chance of a lifetime to repair his heart.  I wish for them to know we will walk beside him and show him love through this all.  I wish for us all to reunite in heaven one day and rejoice that their son tomorrow had a miracle of a surgery!   Here's to you Little Man....We're fighting a big fight tomorrow-with the Lord leading the way!  Romans 15:23  "May the God of hope fill you with the joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy

Can we ever truly be prepared for the unknown?  I have made freezer meals, packed snacks for the hospital, made child care plans, wash all the clothes, stocked up on groceries, talk in an attempt to prepare the children.  But are we prepared to head to into the largest medical battle our family will fight?  Emotionally I feel like a mess, disorganized, confused, second guessing our decisions, and very fearful of the possible outcome.  People ask how long will the recovery be.  Really, I don't know.  The surgical team doesn't really know. We don't know.  First, we need a successful surgery.  Then we will focus on recovery.  So how do you prepare for an indefinite hospital stay, an unintended surgical outcome,  the potential the loss of a child? Ryan and I were blessed to have a great friend offer us a date this weekend.  Yes, a real date (We joke that our dates are the time during our children's medical procedures).  Kind of pathetic!  Dinner at the UW hospital gets old