mortiz007

We are now in the toughest part of the adoption journey--- awaiting the formal letter of acceptance (LOA) for our two boys.   This is the longest waiting period throughout the adoption process and there is nothing we can do to speed things up or know how or what our file is doing on the other side of the world.  More importantly we have no way of knowing how our little boys are doing.  We just pray that the Lord covers them in his gracious hand of protection.  Whenever anyone complains of being cold lately, I simply remind them, two of our children sleep without heat tonight (It's 50 degrees at night).  Not to sound depressing, just a fact and a reminder to be grateful for what you have.  In the meantime we have rearranged our bedroom situation and de-cluttered to accomodate the expecting growth of our family!  All the kids have taken delight in preparing where the new little ones will be sitting at the table, some discrepancy still, but bedrooms are all confirmed and agreed upon!

Yesterday was a day when we realize we just go with the flow and only God is in control!  As a parents of children with medical needs, the day may not go as planned and we have come to accept the changes in our day.  The easier we move with the changes and allow others to walk along aside us the smoother the day goes, no matter the outcome.  Faith in the one who created these special little bodies comforts me knowing He will guide us in their care. Huahua spiked a fever with her immunizations.  I called the clinic in the morning and when her Dr returned the call late afternoon she said after consulting with hemotology clinic it was urgent for her to be treated with IV antibiotics because of risk of bacterial infection.  Without a spleen, Huahua is in a dangerous position when she spikes a fever and unable to fight off infection.  The time frame for her to receive treatment is critical and we are so thankful for her primary doctor's diligent management of her care.  As we preparing

When she crashes, she crashes hard.  We don't typically put her down for naps anymore because she won't go to bed until 11 pm then.  Although I am thankful she listens to her body and rests when needed.  This day she made a little fortress, under the pool table, for the princess to rejuvenate her precious self.    Medically we are still working to bring her oxygen levels up.  The new medication is having some unwanted side effects.  Initially seemed to raise her oxygen, but long term now we have not seen the results as expected.  We have a little room to increase the medication, and will reevaluate just before Thanksgiving with an ECHO and cardio appt.    The other option is to close her fenestration value, which gave her really good reading while under sedation.  Long term though there are possible complications with that route as well.   She saw the general surgeon today regarding her mal rotation of the intestines.  Final result is we will only monitor her symptoms, as the s