mortiz007

Huahua had one long day yesterday, arriving at the hospital at 6:30 am and leaving about 10 pm.  But she was a real trooper through it all.   We were determined not to spend the night and pushed through to get discharged.  The results of the cath were encouraging that she appears to be a great candidate for the next surgery which will be the Fondan.  Huahua's single ventricle, single atrium heart lines up in the middle of her little body.  Her arteries looked to be good size going to the lungs.  The were happy with the pressures running around 11-12 (normal kid's heart runs around 5).   Her inferior vena cava, the vein which will be re-routed with a shunt to the pulmonary artery then onto the lungs to create a passive flow for the lower half of her body during the Fontan comes up mid line, another anomaly of her heterotaxy syndrome.    Her liver also is situated mid line as well.  So uniquely created! She came through the anesthesia well...

Today we are at the hospital and Huahua is undergoing a cardio catheterization to map out her heart in anticipation of her fondan procedure.  She was a trooper this morning as she had to wait until after 1 pm due to technical problems with the cath machine at the children's hospital.  They transferred her the the adult cath lab and is currently under general anesthesia.  We requested Versed (valium) Huahua don't do drugs!  Since she can repeat it....she did...in her slurred speech! this morning to ease the IV going in.  She was still aware things were not as they should be but thought it was funny and gave us lots of unique looks and faces.  Her funny personality came through for the first few hours and then turned ugly, and tired due to getting up at 6 am when the meds wore off.  She fell asleep until minutes before the procedure.  Praise God :)  I carried her all the way to the adult unit and the anesthesologist allowed me to hold her in my...